Living with chronic pain

 By JANELL HICKMAN

5/11/2007

What is chronic pain? It is a concept described a thousand different ways by people of all walks of life. The biggest debate remains not only in what is it, but is it treatable?  It is as vague as it is ambiguous; however, one thing is clear—many people live day to day with chronic pain without respite.

According to an article by Embracing Women’s Health on pain and migraine fundamentals, chronic pain partially or totally disables 50 million Americans in the United States. About 45 percent of Americans seek care for persistent pain at some point in their lives. Over 36 million Americans miss work each year due to pain, however women are 50 percent more likely to take a sick day.

Pain warns us that something is not right, and has the potential to rob one of their productivity, well-being and life.   In ancient civilizations, pain was associated with evil, magic and demons. Sorcerers, shamans, priests and priestesses tried to ward pain off by using pressure, heat, water, herbs, rites and ceremonies.

Medicine and health care have since advanced, yet herbal remedies and holistic health options are still used.  According to Maureen Carling, a registered nurse and a pain management specialist, there are eight types of pain and only two of them respond fully to opioids otherwise known as narcotics.

“The others respond to other types of medications,” said Carling of England. “Some require an opioid and a second medication and others require different medications altogether.”

Often chronic pain cannot be cured, but can be managed well enough to improve significantly a victim’s quality of life.

Quanta St. Lawrence, owner of the Herbal Farmacy in downtown Hampton, is a strong advocate for herbal remedies.

“Natural is the best way to go,” she stated. “It’s a matter of man-made versus something natural that God made. I have more trust in the Lord than any doctor.”

The Herbal Farmacy offers 100 percent natural Chinese and Western herbs, consultations about different illnesses, original proprietary blends, and herbs in capsule or powder format.

St. Lawrence does acknowledge that whether the medicine is synthetic or natural, it is mandatory always to consult an herbalist, physician or naturopathic doctor.

“Never take anything without consulting a doctor. You cannot self-diagnose or self-treat,” she cautioned.

The power of touch is another alternative to medicine. In addition to being a Reiki practitioner, Neal Scott, the business manager of the Mystical Attic, does not promote holistic health care over traditional health care.

“They both have their place. We will not treat people who aren’t seeing a traditional doctor,” said Scott. “Holistic care should not be seen in opposition to traditional care, it should be used in conjunction with other treatments.”

The Mystical Attic, described by Scott, is an “odd sort of business like a meta-physical day spa” offering treatments like massage for muscle and joint pain, Reiki, tarot readings, and shamantic healing.

The art of Reiki has been around for 2,500 years; and is a Japanese technique used for stress reduction and relaxation.  Founder Dr. Mikao Usui, defines the practice as a

“Spiritual guided life force energy.” The focus is on the whole person including body, mind and spirit emitting effects like peace, security and well-being.

“This is only a means of treatment,” he said. “We treat the symptoms, not the cause. Those underlying causes need to be treated as well, they cannot be ignored.”

A 2005 survey conducted by the Stanford University Medical Center, ABC News, and USA Today found that more than one-half of Americans live with on-again off-again chronic pain.  Four in ten of those interviewed stated that their pain interfered with work, their day-to-day activities, his or her particular mood and overall enjoyment of life.  The study also found that women report more serious and frequent pain than men, as well as pain that lasts longer. On the other hand, while women are more likely to seek treatment for pain, women and minorities are more likely to be under-treated for pain.

Daniel Kean a physical medicine specialist at Sentera Care Plex defines chronic pain as “pain that persists long after the expected healing time.” According to Kean, pain that has been present for more than three to six months is termed chronic.

Kean believes in a multidisciplinary approach of physical modalities, exercise, wellness training, combined with interventional techniques and pharmacological therapies. He attempts to educate the patients and their families about different methods of treatments.

“I accept that the patients’ pain is real,” said Kean. “I typically avoid excessive, unnecessary invasive procedures.”

Teresa Miles, budget project coordinator in the Hampton University School of Pharmacy, suffered silently for years from chronic pain.  She suffered from abdominal pain from 1998 to 2001, after doctors told her it was “all in her head.”

Finally, she was properly diagnosed and discovered she had endometriosis, a condition where tissue that lines the uterus is found to be growing in other parts of the body.

The tissue is normally shed; however, in this case it can cause internal bleeding, degenerated blood and tissue shedding, inflammation of the surrounding areas, pain, and formation of scar tissue. In efforts to treat the pain, she had four laparoscopies, before undergoing a final surgical procedure.

“I would have handled the situation in my twenties if I had known it was not normal,” said Miles. “I thought [the severe cramping] was part of being a woman.”

Miles was not placed on any medication other than an estrogen patch during her three-week recovery period. She was advised to rest and not lift anything over 50 pounds.

Miles’ advice to other women is to thoroughly research a gynecologist and have an ultrasound taken to know what is occurring in the pelvic area.

“Take your health seriously,” she said. “As women, we tend to look after others before we look after ourselves.”

The leading causes of chronic pain in women include arthritis, fibromyalgia, migraines, neuropathic pain, and pelvic pain.  Research has shown than sex hormones, as well as psychology and culture play a role in how men and women receive pain signals. Young children may learn to respond to pain based on how they were treated when they experience pain.

“People are surrounded by people with chronic illnesses, but most of us hide it,” said Mary Elizabeth “Bonnie” Gibbons, a nursing PhD student at Hampton University.

“[Pain is] a journey in life with choices of independence based on abilities which are shaped by suffering.”

Gibbons suffers from disabling arthritis, fibromyalagia, and neuropathic pain down her left leg from spine damage.  The next surgery Gibbons has scheduled is a reconstructive spine surgery .She is currently off all of her pain medications due to a life threatening drug reaction called serotonin syndrome, where incompatible medications interact with each other.

“I’m so scared to have another reaction,” said Gibbons. I’d rather sit on the recliner or the floor. I’d rather just tough it out. “

Gibbons says that chronic pain has affected her concentration to the point that she has to write things down. She keeps a notebook about herself handy as well as a list of all her surgeries in her palm pilot.

Gibbons tries to remain as self-sufficient as possible. She recalls how she saw her mother suffer from pain and become homebound.

“After seeing my mother struggle, nothing keeps me home,” she said.” I will rest like the doctors tell me to for my recovery period, but the longest I’ll stay in is a month.”

Gibbons says that caring and confident people have helped her relationship with her health and her self. In the past ten year, she also describes herself as more religious citing “spiritual growth is an important component of the healing process.”

“Every corner I turn, somebody is there to help me,” said Gibbons. “People I don’t even know have helped me through the most difficult times. I trust that the Lord will provide and I just keep going.”

Women are more likely to recover more quickly from pain, seek help sooner, are less likely to let pain control their lives, marshal a variety of resource coping skills, access support and seek distractions from pain.

Hampton University basketball player Stephanie James of Colorado Springs, Colo, suffers from plantar fasciitis, a severe foot pain that results from inflammation of the plantar fascia, a band of tissue that stretches from the heel to the front of the foot supporting the arch. James’ condition began her freshman year of college, from constant running on the basketball court and flat feet.

“Chronic pain is a long lasting symptom that makes your tolerance reach its pinnacle, almost to the point of submission,” said James.

People who suffer from plantar fasciitis complain of a sharp, stabbing pain that is most pronounced in the morning.

James went through a prolonged healing process.  She slept in space-gravitation boots to stretch out her feet, reducing the amount of morning pain.  After they became ineffective, James wore custom-made basketball insoles to reduce the pain on the court.

“The healing process is a never-ending story,” said James. “I’ve been told that you cannot be healed from plantar fasciitis, it is something that will go away once my activity calms down.”

In the meantime, she relies on prayer, massage and Ibuprofen to reduce the discomfort. In her own words, James does not consider herself a victim, but a victor.

“In my mind I am healed by the blood of Jesus,” said James. “Obviously, physically I endure pain sometimes, but I truly believe in my mind that I am healed. The college and basketball experience is only four years of my life, so I am going to live and love while given the opportunity.”

The writer is a junior at the Hampton University Scripps Howard School of Journalism and Communications.